I agree with you all regarding spending time and energy in finding good doctors. I have my list too, of doctors, I mean.
And by the time you find yourself at the end of the rope, and feel that you have to start at ground cero again, I have experienced more than one time comments from doctors like" She has had extensive work up by several doctors".
I have felt almost like I have to take punishment for trying to find the right doctor that is willing to put their professional pride to a test, and be willing to investigate and research to find diagnosis. Many of us here on this forum have multiple diagnosis ofautimmune disorders, and many of us have undiagnosed problems. Many of us also have neuropathy( me included) All theese conditions are very time consuming to diagnose.
We, as patients should not have to feel like this.
Good luck everybody, and do not give up.