Quote:
Originally Posted by red huckleberry
Hi, I was dx with ALS/possible MMN a month ago. No insurance. Trying to arrange things. I am wondering, have any of you tried tumeric, Vit D3, or other unconventional therapies? Also, before you got symptoms, did you hit your head really hard? Doc said that probably didn't matter, but I am curious. I have had slow wasting of my left hand and arm, now it's moving into my right arm and leg. I cannot use my left arm or hand for much of anything now. No pain. I guess I'm looking for an alternative to IVIG, hate needles. Thanks for having this forum, it is very helpful to read what others are going thru.  |
I have MMN, was diagnosed it December 2009. I have been on IVIG and it has helped a lot. I also take a very good multivitamin designed for people with neuropathy problems but has found it to not help.
I would seriously consider getting IVIG asap before just condition worsens and you are not able to walk. If you live in the United States I would apply for Medicaid or Medicare immediatley. This disease will cripple you permanently if you do not get treatment soon. I wish you the best of luck