My neurologist said my mri was unremarkable. I have hired a physiotherapist who is supposed to be good at figuring out what is really wrong with you. He didn't think the mri images were unremarkable. He has treated people with EDS before. It would explain my physical history. I received the suggestion of EDS after my last appointment with the neurologist and don't have another appointment until next April. I mentioned EDS to my nurse practitioner, she said she had never heard of EDS and asked when my next appointment with the neurologist was.
I was considered doublejointed as a child then a person with hypermobile joints. I could put my legs behind my head one without much assistance. I still have greater than normal range of motion. I also have a lot more of the criteria.
On another note I had a bone density test yesterday. I have gone from 5 feet 7 inches (actually a hair under) to 5 feet 4 1/2 inches.
I am not prepared to say who told me about the inequity in medical treatment.
Redcat