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Old 11-25-2013, 01:28 PM
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Brainstemmed Brainstemmed is offline
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Join Date: Nov 2013
Posts: 39
10 yr Member
Brainstemmed Brainstemmed is offline
Junior Member
Brainstemmed's Avatar
 
Join Date: Nov 2013
Posts: 39
10 yr Member
Default thank you!

Kris:

that info is VERY helpful, thank you so much...

i had the same experience with Craig, they told me to go somewhere else...it took 3 days for her to call me back to tell me that...

i am trying to get referred to Spalding, but Kaiser has me blocked for now...

i started calling Spalding on Thursday...no call back...i called today to find out they want Kaiser to refer me...

i have an OD that will refer and write a Rx for vision therapy only...but no other therapy

i need to go to my Neurologist outside of Kaiser for the referral for other therapies...he works only 3 days a week...most likely not at all this week...

Neuro at Kaiser is out all week for the Thanksgiving holiday...

can you tell me where to go to get some additional evaluation done?

i tried calling the doc you go to, but they need to see the paperwork as well, which all takes TIME and i feel like i am stuck in a bad dream with no one listening that i need some help ASAP...

Kaiser refuses, or least is incapable, of doing any testing...hell i don't even know what to test and how to show this is real to anyone that wants to listen...Neuropsychological test is scheduled for FEBRUARY...

i asked my Primary Care for a referral this morning via e-mail...this same guy has been the worst of them all...telling me Kaiser cannot help me, and i might as well get some other insurance and leave Kaiser...if i recorded the conversation, he would be fired...i hope...but it is the Kaiser way...of course, i am ANGRY and i got ****** at him that day and stormed out of his office and shouted to him and to all listening...'what the @#$#% is wrong with all you?' so a referral from him is a long shot...

i dunno what other testing can be done to show the what abilities i have lost and what i am still capable of...

i live like a hermit because leaving my controlled environment is devastating to me...serious problems with motion, light and sound sensitivities and a long list of other stuff...nausea, anger, tinnitus, speech, hearing. cognitive function...i don't think i can remember them all...

i am so frustrated i can hardly see straight...

help seems so far away...no one seems to listen...no one seems to care...no one seems to know who to go to first, second third...

Kris, is there any way you can help me get started in finding someone...ANYONE...that will get me headed in the right direction?

i am miserable 6 1/2 months into this...

any suggestions will be followed up on immediately...i called the doc you go to within 5 minutes to see what they can do, and they may be helpful, but no appointment until i get them proof i am injured...

well, i need proof to go back to Kaiser to tell them how much they suck at this and how wring they are...

who can test and show this and then get approval so i can move on to therapies???

help!

Brainstemmed
__________________
Background:

52 year old with 25+ years of problems associated with Fibromyalgia...

What happened:

while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.

Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...

unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.

i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...


Current Meds:


10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..

legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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