I get nerve blocks about every 3 weeks and I guess that's what keeps me from getting those extreme flares because I did get those in the early days.
Doesn't it just suck that everything is a guessing game with this monster disease?
That really is double hard with kids because they don't understand.
The burning used to feel like you describe but now the worst of the burning pain is dialed down to feel like there's tabasco poured next to my bones. I also take Lyrica when I can tolerate it and Cymbalta. Topical Ketamine cream helps the surface "burning".