I must say I'm not at all surprised, after all at the end of the day MPs seem to really only care about the elderly as they say they vote more. I hope you don't mind me asking you this but what did you really think they would do for us? Please believe me I don't mean that in a 'horrid way' but in a 'genuine I really would like to know what you were hoping they would do' way.. if that makes sense. I've spent my time finding the latest research papers & making sure every medical person (from doctors to dentists, from social workers to PTs in the local gym & everyone in between) who I come into contact with is given a copy & I must say its helped me a lot. My RSD spread last year so I'm now getting close to full body RSD, which I'm dreading, so I made sure everyone connected to me was fully informed about it. MPs seem to change so often that I am a little puzzled as to what they could do to help us that isn't already being done.