Hi,
If it is neurological VowelLady is right in that you should try Amitriptyline or Nortriptyline. Many Trigeminal Neuralgia sufferers have good success with these. People with TN take many different types and different dosages of medications. What works for one does not work for another.
Your post stood out for me because you have been seen by so many professionals and no one can give you an answer. That is a very common story for people that are eventually diagnosed with TN.
The laying down thing is strange though. That does not sound like TN. Bryanna is right about that.
Good luck to you and I hope you find some relief!!
Quote:
Originally Posted by Stacy R
In Jan 2012 I had an infected root canal extracted. It has never been right since. 2 nights after extracted a "swoosh" of air literally blew my mouth open. very odd. For next 6 mths, it felt like something was sliding around in extracted site...had site reopened/debrieved and I have beeen told the area is healed. My teeth hurt all the time. it feels like a bunring metalic substance is oozing out of my teeth, makes my teeth sting, eyes burn, lips tingle/numb. My teeth feel hallow. Been to ENT - nothing. 4 dentists - teeth are "fine" - maybe bacteria getting lodged in the new open space (brush more! B12 deficiency, take zinc, etc); Neurologists - trigemial nerve damage (ok, trying it...on tegretol now...no relief); periodontist ( treated for trench disease (my idea, not hers) --no relief. Even went to Oral and Maxif at Mayo Clinic, no ideas of their own...hmmm, we would call it Atypical Facial Pain, continue w/trigen nerve damage meds. NOTHING is helping, now it is 1 year later of pain. Can anyone help? Know what else I can try? I rad a NICO/Cavitational Disease, Dr Shankland, and was going to try that (basically reopen extraction site, scrape away bacteria, but Mayo Dr. strongly recommends not doing this as it may cause further nerve damage. Hmmm. Off thing. When I lie down, everything Stops causing any pain. Could it be some type of sinus issue that first ENT CT did not pick up? are there other types of sinuses that are causing the drainage feeling? (I do not have known sinus issues). WHAT AM I MISSING? I have had brain MRI, jawbone MRI, blood work - all negative. MY lips sting, my eyes sting, my teeth feel like they are made of foil and ache. It feels like something is leaking out of them. It causes me to "suck" all the time, because something is oozing out and it is a stinging, gross, "substance" - although nothing is there. ANY IDEAS? I would really appreciate it. This takes over my daily life. I have never had any other health issues, no meds til this one tooth was extracted. And, I am not thinking it is nerve damage. Meds have no effect.
Stacy R.
|