Hi Redcat,

Thanks for clarifying. Have you had any discussions about this on the Social Security Disability and/or Layoffs, Unemployment and Worker's Compensation forums?

Regarding the neurologist, from what you've said, it sounds like s/he may not be a good doctor for you. Is there another neuro—more experienced with EDS—that you could see instead?

I can't really comment on your imaging because I don't know how to read MRIs except for the very few things I've picked up here from others—mostly dealing with discs & spacing.

I've had some crappy experiences with doctors, as I suspect many people have. Some I've "fired" (not bothered to schedule a follow-up appt.) after the first visit; others it's taken longer, but the result has been the same.

It's taken a long time to build the team I have now, and I think it's been worthwile.

Doc