Hoping to find people who know more about what this is like. My spouse and family are very supportive. I was fortunate that as soon as the headaches started, I assumed a vision issue because of some intermittent double vision and I was diagnosed early.

I just started Acetazolamide. My concern is that I've heard the condition can come back after treatment and pregnancy can be a trigger. I would like to have children, so hoping to hear from people with this diagnosis who later had children and what issues (if any) came up.