|
Junior Member
|
|
Join Date: Aug 2013
Posts: 46
|
|
|
Junior Member
Join Date: Aug 2013
Posts: 46
|
Quote:
Originally Posted by QWERTY02
Mark, thanks for your reply. I've read many of your posts and find them very helpful.
I made an error in my post, the most debilitating symptom for me is the motion sickness at rest aspect of my post. It's almost like a sensory/movement piece of me isn't working so when I make a movement, I get this ill feeling. It's so incredibly frustrating to describe because it's caused by my own movements/ motion and NOT by external movement (ie driving a car). So to call it "motion sickness" isn't fully accurate. However, it doesn't affect my balance, so I'm hesitant to call it dizziness or vertigo. It's like sea sickness but only when I move from a resting position. Once I get going (ie doing yard work, ice skating, etc) I don't notice it anymore.
I'm just looking for that one keyword or phrase to accurately describe it.
The "spacey/ spaced out/ out of body/ like I'm on medication" feeling is definitely it's own symptom however it's manageable for me. I just tend to group it in with the other symptom from above when I probably shouldn't.
|
Querty, I have a similar situation where I feel like I'm going to fall over, sick to my stomach, and woozy... UNLESS I am moving. Once I am moving -- at a pretty brisk pace -- I am fine. People remark that I'm one of the most active and "driven" people they know, but what they don't realize is that if I'm not moving at a brisk clip and keeping busy and active, I feel like crap.
So, I just keep busy.
The one thing I do need to be careful of, is that I don't overdo it and make it even worse when I stop. Last weekend, I was in the middle of a whirlwind yard cleanup project -- really making good progress, faster than usual, and feeling great -- then I stopped to catch my breath and felt like I was going to pass out. Falling and hitting my head is not worth it to me, so I took a break, drank some water, and caught my breath. Then I went back to work at a more leisurely pace.
You're the first person (other than me) I've ever heard describe feeling this way. It's very odd. So long as I'm active and engaged -- actually doing something -- I feel pretty good. It's when I stop that I feel terrible.
Oh well... I guess that's what keeps my life interesting...
__________________
----------------------------------------
What happened: Sustained mild TBI #9(+) in 2004 when I fell down a flight of stairs and smacked the back of my head on the steps. Knocked out briefly, then bounced back and resumed everyday life, as usual. Then things fell apart -- lost my job, friends disappeared, spouse became terrified of me, money flew out the window, and I had no idea it was all happening, or why. Finally put things together in 2007, when I was researching brain injury for a family member. Have been actively working with a neuropsych and recovering since late 2007, with amazing results I never thought possible.
I blog about this at
.
.
Symptoms: fatigue, tinitis, sensitivity to light and noise and touch, insomnia, general pain, headache, attention issues, emotional lability, panic/anxiety, anger/rage spikes, confusion, difficulty hearing and understanding, slowed processing speed, limited short-term working memory, balance & vertigo issues, difficulty reading and learning new things, nystagmus and tremors when over-tired.
|