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Old 11-29-2013, 02:50 AM
dgih dgih is offline
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Join Date: Nov 2013
Posts: 1
10 yr Member
dgih dgih is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 1
10 yr Member
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Quote:
Originally Posted by PTC_2013 View Post
Hoping to find people who know more about what this is like. My spouse and family are very supportive. I was fortunate that as soon as the headaches started, I assumed a vision issue because of some intermittent double vision and I was diagnosed early.

I just started Acetazolamide. My concern is that I've heard the condition can come back after treatment and pregnancy can be a trigger. I would like to have children, so hoping to hear from people with this diagnosis who later had children and what issues (if any) came up.
Hey PTC_2013, do you use facebook? There are several support groups especially for Pseudotumor cerebri (idiopathic intracranial hypertension) patients, who would be glad to help you.

**

There are many others.

I am from Germany. We just founded an association for this disease to increase awareness, competence and research on this topic.

Keep your head up
Andreas
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