Quote:
Originally Posted by PTC_2013
Hoping to find people who know more about what this is like. My spouse and family are very supportive. I was fortunate that as soon as the headaches started, I assumed a vision issue because of some intermittent double vision and I was diagnosed early.
I just started Acetazolamide. My concern is that I've heard the condition can come back after treatment and pregnancy can be a trigger. I would like to have children, so hoping to hear from people with this diagnosis who later had children and what issues (if any) came up.
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Hey PTC_2013, do you use facebook? There are several support groups especially for Pseudotumor cerebri (idiopathic intracranial hypertension) patients, who would be glad to help you.
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There are many others.
I am from Germany. We just founded an association for this disease to increase awareness, competence and research on this topic.
Keep your head up
Andreas