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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Kevscar ---- Thank YOU so MUCH for this post
I have SFN but this post says it all when I insert SFN for RSD in your wonderful post. I'm printing it out and putting it in my purse. So many people I know say "you're better !" and your words will help me make people understand that feeling better doesn't last for me. Feeling better ALWAYS makes me do more and then I'm down for the count for a few days or weeks.
I've only been dealing with this since May but this monster came on strong and won't let go. I know now that it's a life sentence and each one of us has to learn a 'new normal' and figure out how to live life to it's fullest while taking care of ourselves in the process.
As for the original post....my mom is 82 and comes to my house Mon - Fri from 11 to 3. She use to keep my kids and when they outgrew her she kept coming to have something to do and to help me out while I worked. Since the chemo that started last Dec and ended this Mar she has been my caregiver and so very supportive. She is building an addition on to our house so that we can take care of each other. I could not ask for more from her. She asks me about my condition but I don't think she really understands except that my feet hurt 24/7 and I walk 'gingerly'. Some mothers just don't have the nurturing gene in their bodies. I've met many of them. One is my 2nd ex daughter in law but at least she listens to me when I tell her what my grandson needs.
I hope u find a way to make her understand what you are going through but it may not happen.
Thanks for letting me inject this into your conversation.
Debi from Georgia
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