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Junior Member
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Join Date: Nov 2013
Posts: 39
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Junior Member
Join Date: Nov 2013
Posts: 39
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thank you for the information!
Kris:
your insight has been very helpful to me...thank you very much!
no worries with Kaiser, i am almost completely done with them...i have Physical Therapy scheduled for the next month, then they have cancelled our policy and i say "good riddance"...
and yes, i have found out that neurologists are not well equipped to handle these cases...for the most part i guess...only one of three have been helpful, and he has been around for 50 years, but his specialty is pain...the ones at Kaiser are worthless...and almost scary with their arrogance and ignorance...
and yes, i keep a daily log, it has been very helpful when i look back on what has happened...
so here is the GOOD NEWS: on Monday, i have an appointment with Dr. David Reinhard, whom you suggested i go see...i got in fast and here is how:
i needed a referral from my Ophthalmologist and they did that for me, then i asked that they call and make the appointment for me...when docs call other docs, they get results...ALWAYS...new patients were being scheduled in January...so that worked out awesome...
i have neuropysch scheduled at National Jewish in February, but i sure hope i can get one done somewhere else sooner...
i also meet with my Ophthalmologist on Monday and i will pick his brain, he is VERY good...he does treatments at Craig and Spalding so he knows other good docs to see i think...i want his rolodex!
after 7 months of searching, i think i am on the right track...
your help has been very valuable...thank you very much!
__________________
Background:
52 year old with 25+ years of problems associated with Fibromyalgia...
What happened:
while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.
Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...
unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.
i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...
Current Meds:
10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..
legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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