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Member
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Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
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Member
Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
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HI, I'm so glad you found this group. I forgot that I had signed up with this site and came back a couple weeks ago. It really helps to have others to talk to.
So so so sorry that this happened to you. It's great that you think of things ahead of time. After a while you will notice specific things that you need to do ahead of time. It might feel a little chaotic at first because you're not sure what to do but it WILL get easier.
For me, prevention is huge. I know what actions causes the most pain so I try to avoid them as much as I can. After a while you will know what your hand/arm can tolerate and what to avoid.
I have RSD in my right leg, foot, butt so I avoid everything. I have to lay down in bed all day. But if that's what I have to do to keep the pain somewhat under control.......I'll do it.
I hope you feel better really soon!
Heather
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RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992
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