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Old 12-01-2013, 03:10 PM
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Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
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Debbie D Debbie D is offline
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Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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You got a lot of great info here…I have fibromyalgia as well; that form of fatigue felt like I couldn't hit the couch fast enough…but the MS fatigue make me feel as if I am slogging through thick molasses. I also have a narcolepsy-type of fatigue like Erika described that makes me suddenly fall asleep, which scares me when I'm driving. It occurs during mealtimes too.

I agree that you shouldn't use terminology but rather what things feel like to you. For instance, "Sometimes I feel as if I am walking through wet concrete," rather than "I experience fatigue." It is the description of the symptoms that helps the docs understand.
When I saw my neuro a couple of weeks ago with severe spasms in my legs, he asked me, "Does it feel like stinging?" I said, "No, it feels like a mop being squeezed." He totally understood what I was experiencing.
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"Thanks for this!" says:
ANNagain (12-01-2013), Erika (12-01-2013), Frog42 (12-01-2013), SallyC (12-01-2013)