Debbie, I'm so sorry, that's a terrible thing to happen

I will hope that this is not a permanent thing and that something out there can help at least a little.

I can't suggest anything major outside of whats been mentioned except (I think someone at the top mentioned this) a full look at your diet and environment to see if anything can be changed to benefit you. It might seem like the last thing you want to think about when everything has gone so wrong at the moment, but diet is such a big thing - it is what we eat, the vitamins and minerals we ingest with our food, the chemicals and toxins we ingest through cleaning products, body products etc that all affect our systems. And your sudden full body dystrophy with so much loss of function sounds like your whole body is in crisis for some reason. Of course it could be simply the CRPS rampaging away with no pity or sense , but there's always the chance that something else old have triggered it, or at least be making it worse than it needs to be.

It's just an idea. Might be worth talking to a whole body doctor (naturopath?) and/or getting a full blood workup done to check all your mineral levels. Sometimes the excess or deficiency of a single thing can cause havoc. If you can bear to, I would certainly try eating as natural and unprocessed a diet as you can, with plenty of nuts and olive oil, fruit and veg, and oily fish. Cut out processed sugars and salts, most red meat and processed foods including bacon and sausage (they have all sorts added them).

Environmentally, it's a tricky thing I know. I found I was so much better when we were away by the sea, but we can't afford to move so it's not really a serious choice. I'm sure it's the same for you - we all have to make the best of so much...

Maybe try keeping a diary of food/pain/events for now (you could maybe use a voice recorder on your phone if it's easier) and see if you can spot any triggers of worsening symptoms.

Sorry I can't think of anything useful. I do so hope this situation gets a little better, it must be frightening and heartbreaking. I'll be thinking of you.

Bram