I'm so sorry you are having so much pain. Finding the right combination of meds and other therapies can be a daunting task. I hope that your doctor can come up with something to help you. Have you thought of trying LDN? Others on here seem to be doing well on it and it is inexpensive so you may be able to afford it without the insurance. It's worth a try.

As for your kids, I don't know what to say. I am fortunate that my girls live close by and we talk or see each other regularly. I try to be careful about what I discuss with them as I know it stresses them when they see or hear that I'm not doing the best. DD23 gets really stressed out and DD22 gets so worried. Most of my conversations with them revolve around them. I listen to all their silly stories, their woes, etc. Both of them know when something is up though as I don't respond to the conversation as I normally would. I save the other stuff for friends and even at that I am not a big complainer or discuss my symptoms or pains with them. Usually, people can tell by my facial expressions that I am in pain or not feeling my best.

Texting is a great way to keep in touch with the kids as that's how they communicate now. Me personally, likes to hear a voice. But, it's just a sign of the times. Texting is a difficult task with both pain issues and tremors (if you have them) but Joan gave a great suggestion.

Again, I hope you and your doctor finally find something that will work for you.