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Old 12-03-2013, 12:47 AM
matsonme matsonme is offline
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Join Date: Nov 2013
Posts: 5
10 yr Member
matsonme matsonme is offline
New Member
 
Join Date: Nov 2013
Posts: 5
10 yr Member
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Quote:
Originally Posted by Stellatum View Post
Once I tried to use the poll feature of the forum, and didn't get much of a response, so if it's OK, I'd like to do this more informally. Please respond below and tell us whether you

1. are undiagnosed but suspect you have MG
2. are diagnosed by a blood test that revealed AchR antibodies
3. are diagnosed by a blood test that revealed MuSK antibodies
4. have tested negative for both AchR and MuSK, but got a diagnosis of MG through some other means (tensilon, SFEMG, etc.)
5. have some other myasthenic disease (LEMS, CMS)

The reason I ask is that it seems to me that there are way more double-seronegatives (#4 above) here than the stats can account for. On a MG Facebook page, someone asked the question, and the tally so far is 8 AchR; 1 MuSK; and 11 double seronegatives.

Abby
I am diagnosed by a blood test that revealed AchR antibodies. I was told I have ocular MG (just a week ago, after 3 months of symptoms).
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