Quote:
Originally Posted by moosey2me
Last couple of days has been tough on me.The cold air,or a touch of bad weather..Or walk too much.,chores,etc..Leg has been really bad with pain,swollen,fire and blotchy..Yesterday I was laying down,light sleep ,All of a sudden I had a muscle spasm in my left wrist .made like a fist shook it up and down..It scared me..Today laying down my eyes opened and shut with these spasms...Its really scary..I feel like I do not know how to control these..I have been having more spasms lately.Does anyone else get these?
This afternoon my pain level was a 10,had to go to work.I felt terrible..Then because of the pain,I got sick to my stomach..was not good..Got a gingerale felt better after awhile..still in pain,but not as bad..about a 5..thank you for reading..
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Hi,
I have had symptoms of PN for many years and as many as 32 Drs. misdiagnosed my condition even resulting in a AVM and anyersm in my brain resulting with brain surgery which turned out to not be related to PN. I have had the spasms you are talking about in my eyes, stomach, legs. It is very scary but now that I have a diagnosis at least I know that I will have varied symptoms. I cannot even work as you, having pain levels of 10 most of the time. How you can do it must be very difficult.
If anyone has had an extreme loss of weight in a few months and pain in the trunk of your body could you please tell me. I was so sick with this that I could not eat. Also, does anyone take as much meds as I do; Lyrica, Cymbalta, Morphine, Doxopin, Temazepam?
I was diagnosed finally with a biopsy as everything else had been ruled out. Pretty much matched symptoms on line and requested a biopsy per what was stated the only way to get an accurate diagnosis. Having extreme loss of nerve fibers was apparent and I have worsened throughout the years.
I always felt that the Dr.s thought I was psycho symatic so those of you who are reading this and have the many symptoms discussed in this forum don't let them tell you that you do not have anything wrong. Have that skin biopsy and save yourself many years of Dr. visits.
Being years old I have heard it all from specialists to natureopathics none were able to help me. The meds I take are the only thing that works.