My TOS did start in my hands -- the thumb pads ached and the tops of my hands burned. Then one day I had horrible neck pain. Then my forearms, then shoulders, then bottom of my ribs, then scapula, then chest and armpit. And through it a lll, a diffuse headache and then later a localized headache behind my left eye (my worse side).

I started to feel a little crazy. I certainly felt like my doctor thought I was crazy every time I reported a new symptom. It took 9 months before I had a diagnosis of TOS.

Worker's Comp was fighting me each step of the way. Once surgery was mentioned, they stopped every treatment and I had to go to a hearing. I finally got PT after a 6 month wait but by that time I was trying to turn back the wave. Surgery, unfortunately, resulted in scar tissue on my brachial plexus.

I never thought I was disabled though I had a long term disability insurer that made me apply for SSDI (to lower their payout). Now, 11 years in, I see all the ways this condition has severely altered my life and I do feel disabled.