Hello Kate, and welcome! We sure wish you didn't have to be here

but it's a wonderfully supportive place with many wonderful people. I'm so glad you surfed to the right channel and found out the name of the monster! It's really frustrating to have something so wrong with you and not know what's going on. Many RSD patients go to many, many doctors before finding out what's up.
Look around the board - there are many helpful threads, and feel free to vent away if you're feeling the need to vent - we understand