Update. My Neurologist recommended home infusion, 5 day treatment followed by once a month. The company they called contacted me Monday. They said home treatment was not covered by Medicare part B under but my insurance company (Aetna medicare integration) would cover it fully.
They called back yesterday to say that it was not covered. The medicine was covered under my Medicare part D but I would need to pay $3100 plus $100 a day for the nurse. I told them I could not afford that and would prefer to try to get it at an infusion center. They tried to convince me to go thru with the home infusion. They are checking to see if their company has an infusion center here (Jacksonville Florida).
My understanding from research is that Medicare covers the drugs under part B but does not cover it for home infusion. I also recall reading that the drug coverage for IVIG was included in part B last January for a one year trial with a possibility of it becoming permanent. Does anyone know anything about that. The drug costs would push me into the donut hole for drug coverage on the first use.
Does anyone know of infusion centers located in Jacksonville?