Hi Mary Jane,
Snoopy said exactly what I would have said.
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What you are describing is called Paresthesia, an abnormal sensation(s). These types of sensations can be felt anywhere and can be caused by many different things. You will need to work with your Doctors to try and figure out what is causing you to have these abnormal sensations.
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I agree with your line of thought on your self-diagnosis. I do not have any personal experience with that area but have read about it. Hope you can find someone that will help you. It sure is not from lack of trying on your part to get a diagnosis from many different doctors. How difficult is it to get appts in London? Do not give up. Keep trying to get answers.
Sometimes paresthesia will resolve on its own. If the source is discovered, proper treatment may help or even resolve it.