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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Good morning jcheeves70 :)
I'm about an hour from ATL and knew that Emory had a Neuropathy Dept but I just didn't want to have to ask family members to take off work to drive me up there. This new onco made me realize I HAVE to take care of myself and go to the best places possible that can help me. My husband has offered to take me out of state if necessary but I'm going to give Emory a try. I believe they do quite a lot of research on this and I'm hopeful they can help me find a way to have some quality of life back. I believe u should also take advantage of the Neuropathy Dept at Emory.....the onco said there are lots of dr's in that Dept with extensive knowledge of PN of all kinds. You really need to get a referral now....seems to take a long time to get in since March was the first opening they had for me. I'm sure it will be easier to get an appointment after I am an established patient.
My daughter is going to put in for FMLA so she can help out too. I am blessed to have a wonderful and very supportive family.
As far as the pain meds go....my local neuro, that I don't really care for and have only seen 2 times, does not want me on pain meds but didn't tell me not to take them.....they are prescribed by my wonderful PCP. He wants to get my gabapentin up high enough that I don't need pain meds. I'm thinking that is not going to happen. The onco said I need to keep seeing this neuro until I go to Emory in March. I have no plans to tell my neuro that I will be going to Emory.
Take care and pls keep us updated and always remember we are here if you just want to talk, vent or whatever 
Debi from Georgia 
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