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Old 05-22-2007, 10:07 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Melody, please try to understand...

here that our concerns are real...IVIG IS a blood product, and the LAWS and PROCEDURES for handling blood products are VERY STRICT.

Please pay special attention to pages 11 & 12 in the following site.

http://www.primaryimmune.org/pubs/nurse_guide_igiv.pdf

While what the nurse did was 'expedient' -a way to get it done, I really think you should call the source of the IVIG and just ask questions....explaining all that happened -in set up and in infusion. It mite not be the nurse's fault, merely that she's not had up to date training on what a Nurse CAN AND CAN't DO. So many other factors come into play, we won't play with them, OK?
Promise me, that you will call your prescribing doc, the neuro right? And, just ask IS THIS THE WAY IT SHOULD BE DONE? You check that other bag of IVIG in your refrig, now please, and IF IT too is leaking. YOU CALL THE COMPANY/SERVICE NOW [they have pharmacists on call 24/7] and someone will call you back ASAP. REFUSE NOW that bag being put into ALAN! I trust others here, I believe I did receive a contaminated bag/batch [AT a hospital, no less?]. ALAN's life is too precious to you, and thus, to us...to trust in possible human error. Stuff, does happen. This kind of thing, with all the regs on IVIG, shouldn't.

Please, call your doc, and the IVIG supplier, who is it? Gammagard, Gammunex? Whoever...I can get to you the web-sites and 800 #'s in a flash, just tell me which who? The manufacturers really DO want their products into any patient in the safest, fastest [as safe] and most professional way! I've dealt with these guys, and really once you get them - they can be really really good sources of support!

I hope we all hear from you soon, usually if anything icky happens, it's in the first 2-3 days after an infusion...could be the first or the second.

I don't want you to panic, I just want you to be SURE you know what you REALLY need to know about getting it safely!

's to you both! - j
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