Hello brave girl and renee. I am so sorry that your daughter has this condition, brave girl. I know that I'm one to deal with these things decently well, even though on the inside I'm screaming at the top of my lungs. I understand where you're coming from as a mom, because my mom doesn't deal with me very well because of how high-maitenance I am. It's not that she doesn't care, it's that she doesn't know what to do when I'm at my worst. I wish you best of luck with your daughter, and I'm glad her pain level has decreased a bit. I will pray for her. Renee, thanks for the response. Again, it's nice to know that there are others going through this. I really thank you for support, and if you ever need someone to talk to about your pain, or need help with anything, I have a lot of experience and could probably resolve your problem. Just post on this forum and I'll respond with a caring answer .