I have spinal stenosis but also 20 years of advanced PD. The dystonia and dyskinesia haven't been so good for my spine. I have had two cervical fusions C/3 thru C/7. There is another herniation just below the two fusions. They tell me that as the Parkinson's keeps pulling me over that my spine will continue to break down. But I'm going to avoid another.surgery as long as possible. The pain can be excruciating. I also show arthritic changes making things more bleak.

I tried two sessions of acupuncture but didn't feel like it did anything. Maybe I should have stuck with it. Reiki makes me feel better while in the sessions, but I can't have someone following me around cradling my head or touching my neck. Yoga helps keep me flexible and less rigid, but as you know can get expensive and insurance doesn't often cover as they consider those such treatments as alternative therapies. I have been on Neurotin,but didn't see much improvement, and it messed up my other meds.

So, for me, my relief comes from strong pain meds and periodic procedures thru a pain management clinic. I am careful to not use too much, and often have to sit or lie down until the disabling pain subsides enough to get up and go again..

It's sad, but the only way I get relief is to aggressively treat it. Three doctors have suggested deep brain stimulation, but I just don't want to take such a chance with all these other problems, and using it for pain management doesn't have much I find promising in research.

I really hate to hear of dystonia and dyskinesia happening to anyone. The one nice part is not everyone with PD will have dystonia and dyskinesia. Just lucky, I guess. Another well known fact is what works for some does not for others.

It's frustrating.
Peggy