Thread: Re-Visiting DM
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Old 12-11-2013, 03:52 AM
johnt johnt is offline
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
johnt johnt is offline
Senior Member
 
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
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Rick writes:

"My point is that we can be rats of distinction simply by keeping good records."

Yes. Yes. Yes.

There's the private side of white-ratting. You take something that you have good reason to believe to be safe: it makes you feel better, so you continue to take it; it makes you feel worse, so you stop. That seems a reasonable approach to me.

But, we can get so much more benefit from the process if we communicate and share our results. This is the public side of white-ratting, it requires:
- measurement;
- statistical analysis;
- controls;
- placeboes;
- blindedness, etc

Provided we, PwP, have the will, we can do all of these.

At the very least, can I urge people (white-rats, other PwP, non-PwP) to provide some data to my online PD measurement and analysis web site PDMeasure:

http://www.parkinsonsmeasurement.org/PDMeasure

This measures your side to side tap test score and stores the results anonymously in a database. The anonymous data is open to anyone to download and analyse.

Just imagine how much more impact it would have if we could quantify the effect of our white-ratting.

John
__________________
Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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