Online shopping is a huge blessing. Our Christmases are large, extravagant, and expensive and I never had to leave the house. Thank you Amazon! (And Lego, Williams Sonoma, Macy's, and even Petco!)
I would also be unable to live by myself, Elaine, especially since CMT is progressive. My husband simply has to outlive me, although I could possibly live with one of the children, or have them live here. If some girls don't appear to take my sons off my hands I am sure one or more will still be home. I wish I could order a daughter-in-law online!
I have had to get up and pace in the back of church when the tension in my legs just got to be too much. At Latin Mass you kneel though most of it and it is somewhat humiliating to have to sit back when much older people are kneeling but I learned my lesson about that. My legs can go so numb I can't walk at all afterwards.
I try not to think about the future more than I need to for practical purposes. We did have the floors leveled, the porch door changed to easier opening and wheelchair width, and the washer and dryer brought up from the basement. For now I can make it up the stairs to bed, but it is difficult.

I hope you see some improvements from the treatments, Elaine.