Thanks so MUCH en bloc.

Your words confirm what I was thinking. I will see what happens with the IVIG today. I thought she said IV Medrol, as well. But I'm not sure what will happen.

I took prednisone YEARS ago (we're talking 55 years ago!) and my mother took me off of it suddenly since she was worried about side effects.

Needless to say I 'crashed' horribly and then got Mono. Probably all due to the sudden, dangerous withdrawal from Prednisone, which was very NEW then.

Now I am in charge of things and am very compliant with medications and very aware of issues with Prednisone.

I just SO MUCH want this IVIG to work for me. I have not been sick since I started adding IgG to my system. And my IgG has risen by 100 points, from 388 to 488, which is over 25% since the end of August.

I hope you know how valuable your comments are for me. And how much I appreciate that you took the time to share your knowledge, experience, strength and hope.

I know we are all different (boy, do I ever know!) but hearing from those who have 'walked the walk' is an enormous reassurance to me.

I'll let you know how things go today. And I know that any reaction I have will be delayed by at least 48 hours or longer. I had no problems with the actual subcutaneous infusion at all, AT THE TIME. And I liked self infusing….but a weekly reaction, increasing in length and strength, made is impossible to continue with the weekly treatments.

Hugs, Elaine