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Old 12-20-2013, 07:22 AM
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Vivid, good to see you back, but I'm so sorry to hear how bad things are now...

I'm so so glad you are not doing that PT anymore, ice is SO bad for CRPS, and your therapist, however nice they were, sounds like they were doing all the wrong things to treat your actual condition. It's a terribly sad situation when you can't trust medical professionals

I don't know what to advise about the SCS, because as you say, there are so many different stores and opinions....it's really is something only you and can decide. I hear you on the 'opiates or nothing else left' as far as the meds go, it really sucks when you realise how little they really have in terms of pain relief options. The SCS is invasive, but as you say it has worked well for some....if your pain is terrible already, maybe it is worth a go? I wish you loads of luck whatever you decide.

Hang in there Vivid, and don't give up hope of there being something that can help you with this horrible disease. I'll be thinking of you.

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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