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Old 12-20-2013, 09:42 AM
johnt johnt is offline
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
johnt johnt is offline
Senior Member
 
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
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I thank I_Got_it_2 for his honest posts. I suggest it is up to him and his doctors as to whether he continues with his approach.

soccertese raises the issue of the thread being "potentially dangerous". As far, as I can see it I_Got_it_2 has made it clear that his posts are an account of his journey. I can't imagine any reasonable person gathering from his reports that his approach represents official advice.

soccertese can you guarantee the safety of every one of your 1700 or so posts if they got into the wrong hands?

And, for all of us:

What of a person who is encouraged to take part in clinical trials by posts to this forum, and these go wrong?

What of a person who reads a post here which encourages them to exercise, only to suffer a heart attack?

What of a person who reads posts reporting good results with agonists, who goes for these, and who several years later is confronted with terrible compulsive behaviour?

To go down the route where every post had to be safe for every person, at all times and however they understood it, would mean that every post is censored. The forum would do no harm. But it would do no good either.

As it is, I only ask that a person is honest in their posts. I_Got_it_2 is that.

John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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