Hi Deb, Like Joan I was an RN as well and had never heard of this condition prior to getting it myself. I know that many rsd sites mention there are many of us with this problem but I only know of 1 other in my area that has it. Most doctors I went to hadn't heard of it either. Could it be that only a minority of us don't get better? I would imagine that the ones that do recover simply go on with their life and don't mention it. That might explain why we don't hear of it so often. Just a thought. Like you it does tend to get on my nerves. I'm always having to explain to people what it is because none of them have heard of it either. Hope you are having an OK day..Jeannie