Hi Samantha

That is one brave little 'lol' at the end of your post... I find it hard enough at 40+ to deal with this disease - I'm not surprised you are scared of the future when so much has happened at such a young age. It's not fair. That's a massive understatement though, because it completely massively sucks. BUT you are obviously a fighter, and you will still have a life despite what this condition does to you.

I hope your bone problem doesn't make things too much worse, and that you can put off any surgery for as long as possible. Are you taking the Vitamin C daily? It's no cure (we wish it was tho!) but helps to prevent spread and strengthen your immune system. Have you looked over your diet? I'm sure you eat healthily anyway, but make sure you are getting enough vitamin D, etc. Magnesium is also really important and is absorbed well through the skin via the good ole Epsom salts

I've got to dash as my husband has just got back and we have about a million OMG last-minute Christmas things to sort out... But take care of yourself and I hope you have a better day.

Bram