Member
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Join Date: Aug 2009
Posts: 914
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Member
Join Date: Aug 2009
Posts: 914
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POTS seems to be diagnosed a lot now. My daughter had these same symptoms. It was explained to her that the normal response to standing (decreased B/P, increased H/R) was not working for her. When she stood up her B/P went down and her H/R went up but it didn't stop going up as it should normally.
She had a tilt test and fainted before the meds could be administered. They let her H/R keep going until she passed out at 225. I was allowed to stay with her because I am a nurse. That was so hard for me to watch. I was telling them to stop before the 225. They wanted to see at what point she passed out.
She was a teenager at the time. She did started to take Florinef and it worked. It increases the blood volume thereby helping the B/P to not drop as low. This prevents the H/R from racing and not stopping.
It is essential that you have a good fluid intake. Drink a lot of water and use foods with salt. She carried a water bottle and ate pretzels whenever she felt faint.
It went away about two years later. Every once in a while she feels light headed and realizes she is probably a little dehydrated.
If they are suggesting the Florinef I personally would give it a try. It might work.
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