Hi All,
Been reading this thread & it is so agonizing just how much Dr.'s do NOT understand but yet they can act as if they do.
I fight my own battles with that, just not internally (yet).

I'm so sorry you're going thru that. It must be a very scary feeling.
Everything I've read saysthat RSD/CRPS can spread anywhere in the body.
Please keep us posted on how things are going.