I felt like as usual I was being attacked from all sides by my family this Christmas. I was in alot of pain because I did more cleaning and cooking than usual and all I got for a response from my family was that I was a hyocondriac and weak and that I should stop talking about being in pain all the time. That's hard to do when I am in pain all the time.
I almost fell down the stairs because I trying to carry a light basket of laundry with my good hand. No one offered to help but luckily I didn't fall or hurt my bad hand and wrist.Then my mother was very cold to me when I said I was sick from loosing my Great Aunt and that I wished she could have helped more. She didn't want to hear it and didn't seem to care that it was affecting my health. My brothers didn't call me back for Christmas and I feel very alone right now. I know my husband and son love me, but I feel like I'm being treated like I'm not trying hard enough to get better. I"ve read that rsd pain is one of the most painful forms of chronic illness. Terminal Cancer pain I think is the highest. When I told my friend that even though cancer is horrible, at least drs have a plan of action to try to conquer it. With rsd, the drs are all just guessing and they all say something different when it comes to treating it and it's very scary. My friend said that cancer treatment don't always help either, but that wasn't my point. She didn't get it and I just didn't feel like arguing. No one ever tells a person with cancer to their a hypocondriac or weak. They don't tell people with cancer to stop talking about it all the time and then maybe they would feel better. Then why do people think that rsd is any different? It makes me so mad and it hurts. I understand your depression Songbird and I understand your loneliness Chaos. I feel the same way and though I love my family, I feel like I just want to hide in my room and cry. I had such burning pain last night that I couldn't even have the sheets on my skin. It hurt so much I had to take an extra pain med. (which my dr said is ok, but I don't like to to it.) I finally did and fell asleep. Maybe today will bet better for all of us. I will pray that it will. And I want you all to know that you make me feel less alone and I am here for you if you need a friend to talk too. I'm sorry I'm so depressing but I'm having a really hard time too and I don't know what to do anymore to deal with it. I feel like I'm on my own with this horrible monster called rsd, and it makes me feel really bad and afraid that my family and friends an drs just don't get it.