Hi,
I'm sickened to hear what happened to your daughter. I have RSD/CRPS. I had a feeling that half way through reading it you were going to say that. There are SO many symptoms of RSD/CRPS. I can't believe that it would spread like that. Mine started in my right foot then after having back surgery (for the rsd) it spread up my entire leg and into my butt. The only symptom I have is the burning pain but all the issues she has are classic symptoms. I would get her to a pain doctor some people here have mentioned going to neurologists. I know you mentioned specialists but I wasn't sure what kind she had gone to. It's a crazy condition because there aren't 2 people that have the exact same symptoms and story.

She so young to have to go through this. I wish her all the best!

The RSD/CRPs forum is at http://neurotalk.psychcentral.com/forum21.html
if you want to go there at any time.
Heather