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Old 12-26-2013, 10:32 PM
Lottie Lottie is offline
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Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
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Quote:
Originally Posted by vividDC View Post
Thanks all, I am going to see a spine/neurology doctor who specializes in CRPS/RSD, my case manager found him and has worked with him in the past, and she is setting it up for me. The SCS trial did not get approved in time anyway, so it is pushed back. I have more time to research and consider it now, and I think it will help to get advice from this new doctor who has worked with many CRPS patients.

About Baclofen, it is one of the only medicines that helps me, but not so much with nerve pain, it helps with the spasms from muscle atrophy, and it doesn't make me fall asleep like other muscle relaxers. I did pass out from the pain last week, that is why I went to the ER. It hasn't been much better since, I got close to that level of pain today. I definitely do not feel safe driving lately.
Good luck with the specialst. Let us know what treatment options you learn of. It is hard to find a doc truly knowlegable about CRPS.
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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"Thanks for this!" says:
vividDC (01-04-2014)