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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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It was exactly one week before Christmas a year ago that my MG took a turn for the worse. Prior to that my MG had good days and bad days and spells when I felt almost normal. I think it was the stress of last Christmas that made my MG hit a new low level and I started falling. I never have periods when I feel almost normal anymore.
They upped my mestinon and that helped. They put me on pregnisone and I felt a big improvement. Since then I am down to 10mg of pregnisone every other day and I am now on cellcept too. My MG is much more stable and I have not fallen in 6 months.
I would call your neuro and let him know how bad you feel. It may be time for an immunosuppresant. I have had no bad side-effects from cellcept but it takes a while to work. Pregnisone can give you fast relief but it has severe side-effect and the weaning off process was horrible for me.
Hope you find some relief soon
kathie
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