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Originally Posted by sam71
Thank you Yellow and Neurochic! I left messages for several (pain) doctors my friends recommended - I'm hoping to hear back after Christmas.
I am most definitely keeping my hand moving. The ortho wanted me rubbing lotion on it all the time. It seemed weird to me at the time he suggested that. This site is helping me understand why it's important. At first it was too painful to touch -- but thank goodness that's better now. Unfortunately, the pain has traveled and I'm having issues with my legs and neck.
I'm struggling with the idea of taking a pain med (left over from the sprain). This may sound silly, but I'm not sure how to gauge my pain. It's like I've been in pain off and on my entire life -- and this isn't the worst pain i've ever felt. I get caught in a trap of "Well, I'm not in tears...so I can deal with this!" My friends would have a fit to know that I'm in pain and being stubborn about trying to get some relief. I'm wondering if anyone else goes through this...???
At the same time, the pain has been bad enough that i've barely slept the last three nights (I guess that's my answer right there).
Anyway, so glad I found this group. Thank you so much for sharing your experiences!!
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Hi all, this is the first time I've been on this site as well but have had RSD or CRPS for 17 years now. When I was first diagnosed I had a neighbor who I found out had it and she told me she was going on her 10th year with it - I said I will NEVER have this for that long! I'm going to be the first who finds a cure. Well, what an optimist huh?
One thing I would caution anyone who is new to RSD is to not read too many posts about this. There are so many horrible stories out there on the internet that it can be depressing and scarey. This site seems to be more helpful and hopeful than most but I agree with someone who said that this disease, syndrome, whatever is different for everyone so don't think that just because one guy who has RSD has a morphine pump it means that you will as well.
Sam, your story just makes me want to scream, the way the docs have called you (and others) crazy and won't help and aren't educated about this.
Please ask for help. You WILL find it somewhere. You're in Colorado and I have found an incredible healer in Las Vegas area who says (and I've talked to some of his patients) that he can help with this syndrome. Maybe not CURE It but make it lots better. I went there for a month and my pain was WAY less - about 40% less- and I'm going back for another month. He uses
alternative methods of course - his name is Rob De Martino *edit* and he's incredible. If you have the money and the time you might want to check him out.
But don't treat yourself like everyone else has in your life; ie. not believing your pain or that you need help. (I'm a psychotherapist - can you tell??)
Treat yourself the way you would want a caring loving doctor would - find a good pain doc - not just a GP but someone who has experience with this disease and make it your job to find relief in your life - you're worth it!
I feel, after reading these posts, that I was very lucky to have been diagnosed by my podiatrist (my pain is in my left foot) within two months and have had care by a pain specialist who actually has RSD himself! Don't know how he does this.
Long post for my first one but I hope it's helpful. I am so sorry for what
you (and everyone else here) has been through and the pain we're all experiencing. Gotta go take an Actiq now (it's the fentanyl "lollipop" - I find it works best for me!)
Best
Roberta