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Member
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Join Date: Apr 2012
Location: Indiana
Posts: 430
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Member
Join Date: Apr 2012
Location: Indiana
Posts: 430
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Same old me with new stuff
Im back from hibernation all. Just a bit worried about a few things with me. I may have mentioned this before but, for many, many months now my hand writing has gone down hill. I write like Im back in the 2nd or 3rd grade. I can't hold the pen or whatever correctly.
I do my best, but I can only do so much and then my dh has to take over because I can't do it anymore. Can anyone relate? Also, I can no longer stand straight or sit straight. Im always leaning forward. If I do attempt to straighten up I fall right away. I can lean back in my recliner or w/c no problem, but I can't sit at the kitchen table to eat dinner without sitting forward.
If I try to sit back I fall. Anyone else have this problem? I can feel the progression happening in my body, Im just not sure if this is part of it. My peripheral vision is getting worse. Seems like you know when a horse has those blinders on, that's how I see, and sometimes those blinders close up alittle more. Im having trouble turning my neck and my eyes don't like to turn either. Oh, Im a mess. Now for the embarrassing part.
I take 8400mg cranberry tabs to help keep away those nasty uti's. I have noticed, at times its pretty cloudy, and then the next time I go its perfectly clear. I don't get it. Im terrified of uti's. Ive had a lot of them in my life and they hurt like the dickens. I also had an accident one night while I was sleeping. I freaked out! It has happened 2 more times while I was wide awake. I day I couldn't get out of bed because my legs wouldn't work. They finally started to work, but that scared me. I guess I wondering if it sounds like Im finally heading into the SPMS stage.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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