Quote:
Originally Posted by gr630_1969
I have had Transient Epileptic Amnesia since 2009, and have suffered 29 seizures since then. They are always the same - I wake up in the morning and can't remember what I did yesterday. In the worst event, I did not know wy wife of 39 years. My neurologist has me on gabapentine and oxcarbazepine, which seem to lessen the severity of seizures, but I still get them. He tells me he is working on a new treatment plan, so we will see. I am only the second Transient Epileptic Amnesia he has worked with in 18 year of practice, so you can see it's pretty rare, and the docs don't have a lot of data to work with.
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I have had it since this past June 2013. It's so rare, neurologists don't acknowlege it as it's own condition. My doctor just calls it temporal lobe epilepsy. However, when I read descriptions of TEA episodes on the internet (example - The TIME Project) I know beyond a doubt that I have it. My doctor has me on Keppra, which has slowed the episodes down a bit, but has not stopped them. I have to convince her to let me try Lamictal.