Hello, I am so grateful I found this site...I have the rare Idiopathic Hypertrophic Pachymeningitis according to the CDC biopsies from my tumor resection in Nov of this year. Now, there are many more tests I will be undergoing this next January at Mayo Clinic plus I am part of a special Research as well there.

It is amazing how Sept 24, 2013 will always remain a "huge change" of my life. I have not been able to work or drive since that day...and met so many different people I had never thought of meeting in my lifetime...but here I am.

I still have trouble with speech and therefore some writing, so forgive me if there are any errors. I am being treated for my focal siezures with Keppra at this time.

Through God's blessings, I do believe in prayer, especially when my neuro surgeon prayed with me just before the craniotomy...I am still here. If you have ever encountered a Near Death Experience, you will understand that when I say it was not "my time to go"...the Lord told me this during my surgery which had some unexpected problems.