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Old 12-30-2013, 08:15 PM
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zookester zookester is offline
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Quote:
Originally Posted by Vrae View Post
...and I think it goes without saying, painful too!

Okay, I'm kind of all or nothing here lately on NT, sorry about that. But I do have a question for you... I really need some feedback on this if you can.

So since my horrible back surgery in 2004 and the arrival immediately thereafter of CRPS II, I have lost some feeling (again since immediately after surgery) in my right leg/ankle/foot. It's numb but I can still feel some things in the right half of my calf on my right leg and this goes all the way down to my toes. I have had spasms since surgery and progression of CRPS in that leg and with the spread I have, well, I have spasms in lots of places. The worst being my legs and lower back.

My point is this. I stretch my legs often, or at least try to because it feels good. Sometimes when I stretch the original CRPS site of my right leg, ankle, and foot it feels like it's going to get stuck!! I mean like stretch any more intensely Vrae and it's going to get stuck that way, and it doesn't have to be a full on stretch for it to feel that way. This ALWAYS freaks me out!

I am hurting today , no idea why today. The sun is shining, weather is okay, yadda, yadda. But I am, and I am spasming in both legs today too. I'm having the lovely crushing feeling like my legs are in a vice grip type pain too, and a dash of electric shock.

So I just stretched because I have been laying around today, and yikes , it felt like my shin and ankle would stick, or be stuck in the stretched position. It's another painful experience and again, always makes me wonder if I am in danger of a contractor that will never stop. Is this how contractors start in CRPS?

Spasms as of late are far more intense, frequent and freaky. I recently got a small Rx of valium, because the somas no longer seemed to be working very well at all. The first few doses (like 7-10 days) of valium I could feel improvement. Now this. What the heck else is there to try? I do hot bathes/soaks, those help some.

Is this just going to be the gig now? And what... perhaps worse? <sigh>
Hey Vrae,

Have you ever tried Baclofen? I've been having visible muscle spasms in my original site of CRPS II since the day it all began (like you upon waking on the recovery room table) and then over the past few months they became more progressive in other parts of my body (diaphragm, opposite thigh, shoulders & arms) after ruling out medications as the cause (some meds do cause spasms/tremors) we realized it was in fact the CRPS spreading/progressing and so I started taking Baclofen 1-2 10mg tablets 3 times per day. That has really helped even though they haven't completely disappeared they aren't as jerky now. The first real bad one happened while I was driving and literally scared the freakn' daylights out of me because it literally pulled my foot of the peddle and the pain was so intense I wasn't even paying attention to my driving for a few seconds.. not good. Thankfully with the Baclofen I haven't had another jerking episode like that, so I can still drive short distances.. until that no longer works

The epsom salt soaks help also and if you can massage in the areas where touch sensitivity is tolerable. Lactic acid builds up in our muscles when we stop using them which causes pain to increase so anything you can do to help rid (like with Vitamin C & regular movement as hard as that is) your muscles of this should help lessen the pain some anyhow. Wish there was more.. I so do!

Keep posting you are crackn' me up with all your gif's
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"Thanks for this!" says:
Vrae (12-31-2013)