It took over a year, 2 different brain surgeries, any and every specially doctor out there finally Baptist hospital could not DX my disease ,meetings sending test to another state and no one had ever seem anything like my condition, finally my wife asked if we needed to go to Mayo or John Hopkins hospital and the rhemuatory doctor said let me call another doc here at Vanderbilt Universary Hospital and see where he would direct us, this was a brain cancer doc,we know it is not cancer... but he gave him a name of a guy who is in the Vanderbilt Group over at the MS Clinic, got the appointment, all test and MRI's Spinal Tap results everything I had been tested for with neg results were sent before the appointment, walked in he asked a few questions printed out a page on this IHPM and that was my DX everything it said I had, I was happy to have a name of something so rare, but it had a name....Then treatment began I was told this would be trail and error for the coarse and then we finally found a medicine that helped after all the high steroids and other drugs, called Cellcept I have been on it for nine months, things are better not a miracle drug, but I have improvement with this disease.