Quote:
Originally Posted by kyoun1e
So six weeks ago I had left shoulder surgery. This may or may not have contributed to my current condition. Although I wouldn't be surprised if it did considering how immobile I was in the early stages.
Anyways, had a followup appt with my ortho. I had already discussed the previous episodes I'd had with my TOS symptoms. Last time I discussed this my ortho basically said, "let's not chase this with all kinds of tests, etc. Best guess is that this is a brachial plexopathy that will pass."
So, I bring this up again yesterday and the whole thing was just pooh poohed. "Let's see where you are in another six weeks."
I was like, "Six weeks? I can't sleep a lick now and you want to wait another six weeks? I could be dead in six weeks."
So frustrating.
Unfortunately, I've seen this movie before. The only two Drs. who get this are Dr. Donahue at Mass General and Dr. Kasparian at Lahey Clinic.
KY
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My experience is that generally, docs are clueless when it comes to TOS. I'm in the Boston area, supposed hub of superior medicine, saw over 30 docs since symptoms began in 2009 (including shoulder specialists, physiatrists, neuros specializing in peripheral nerve entrapment) and not one considered TOS, some dismissed it when I brought it up. Some got downright nasty when they thought I was engaging in self diagnosis. Finally I made my way to Dr. Donahue who has offered surgery for NTOS. He told me one of his patients saw 50 docs. I understand TOS is often a diagnosis of exclusion, but the lack of knowledge about it in the medical community is baffling. I'm sure you'll get to the bottom of what's likely going on when you see Dr. D.