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Old 01-02-2014, 10:41 PM
Mariel Mariel is offline
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Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
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I'm shocked! Very poor care.
Please reread Mrs. D's advice on minerals and D3 which might help you. I would be having really bad spasticity if I were not taking enough magnesium and calcium. I do not know if the D3 is related (must be, for absorption?) but my pcp tested me for D3 deficiency as she did for many patients, since it's almost an epidemic.

I have regulated spasticity without Baclofen for a couple of decades, so long ago I can't even remember the date. My neurologist at Scripps suggested I find a Mag which causes the least diarrhea, since I failed spectacularly on Baclofen and Zanaflex. It worked. I do need an equal amount of calcium, unless I've had a lot of dairy in one day, in which I case I lower the calcium. It works out to about 1000 mg Mag and 1000 mg Calcium. i take them in divided doses, for better absorption, and take the Mag separate from the Calcium, also for better metabolism of the minerals, which are "antagonists" (Have I got that right, Mrs. D?) B1 will potentiate magnesium (100 mg a day, not too much). Vitamin E complex now seems necessary too.
I have progressed to the point where I also must do extensive stretching and self message. I include fervent prayer to my night-time routine. About half the nights I may be kept awake with uncontrollable spasm and jerking of legs and low back, but getting up and drinking ginger tea and taking my mind off the condition helps. I don't know why it is worse at night.
My condition may be caused by MS or by Porphyria. I do not know which, although I suspect that porphyria (especially my type) sometimes results in MS signs and symptoms. Both can cause neuropathy. I am still walking well most of the time. Use a cane if navigating rough terrain or stairs, because feet are numb.
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