Quote:
Originally Posted by fuzz
Hi All
this is my first post - but I have been reading your posts for a while now
my wife was diagnosed with TN 5 years ago - she has had two operations and taken so many drugs I cant remember all the names - nothing has worked
I watch her suffering unimaginable pain every day - and I try to help - but nothing I do seems to help
does anyone have any advice about how I can be supportive in a way she might appreciate or have any ideas about stupid things carers say or do that I should avoid
any advice that can help me help her would be great
thank you
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Fuzz,
You sound like a very caring compasionate man. How wonderful.
I have spinal fusion pain with the PN pain from waist down to my toes. My husband is willing do almost anything I ask, and I am very grateful. But, he does not seem to be able to show very much compassion.
I tell him how badly I feel because his life has changed as well because of my 24/7 pain. He just usually smiles and goes about whatever he was doing. I just wish he would give me a hug and let me know all is okay and he understands .
This is so important. Hope this will help give you some insight.
Gerry