Quote:
Originally Posted by Rrae
Welcome to the both of you! 
You've surely come to a great place for support.
I'm sorry to hear of this rare condition. I will have to read up on it to get more familiar. How wonderful that you both found each other to be able to share information on what you are going through.
NT is a wonderful place, down-to-earth and very caring people. It's great to have you with us!
Please let us know if you have any questions or need help finding your way around the forums.
Happy New Year!
Rae
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Thank you so much, Rae...this disease is as it is first "quoted" Idiopathic meaning "unknown"....so with continued tests they may be able to find a better diagnosis...or as my neuro surgeon, said maybe not. In any case, there are so many immune diseases including my own that I already have as a Celiac that actually opens the doors to more...I am not that surprised...Am hoping that I am not found to be unable to eat many other types of food, because losing gluten was so tough....I just loved doughnuts and wheat bread and rye bread...
In the meantime, I have been looking at many different leads to read up about it and the many different immunes that can be part of my testing...I have agreed to be a part of a special Research program through the Mayo Clinic with my brain tumor tissues to help others.
Hoping this year is better for those who are in this special site.